A girl with inflammatory bowel disease (IBD) has defied conventional wisdom and thrived on a gluten-free diet, becoming one of the first children to thrive on a new and unusual diet.
A girl with chronic, inflammatory bowel disorder (IBS) has been able to defy conventional wisdom about a gluten free diet.
Her mother, Mabel Kastor, said she had tried to follow conventional advice to avoid gluten, but her daughter’s symptoms were not helping.
“The first time we were in the hospital with her was when we had her in a coma.
Her brain was completely shutting down,” she said.”
She was very depressed and she had very severe colitis, so she was completely overwhelmed by her condition.”
I was shocked that she was able a normal diet could manage this condition so well.
“My daughter is the first child I’ve seen who has managed to survive and thrive on something that is totally different.”
The first child to survive after a gluten diet, with the help of the new diet, is Mabel.
Her mum, who is now 25, said her daughter was the first of a growing number of children in Ireland who had managed to do without gluten.
“When we first came into the hospital she was just really, really ill.”
Then the last few months she’s had a change of scenery and has been doing well.
She’s had no gastrointestinal problems at all and her blood sugar is really normal.
“The gluten- free diet is the opposite of what is commonly recommended, with doctors prescribing drugs to prevent IBS symptoms and with a gluten allergy.
The diet was introduced in the early 2000s by the National Institute for Health Research (NIHR) to tackle IBS.
However, it has been met with controversy, particularly among patients who suffer from the condition, which has become so severe that it can cause serious complications.
The new diet was developed by Mabel’s mother to help manage the symptoms and avoid the complications.”
There’s no question about it she is going to get through this,” said Dr Marlene Kelly, the chief executive of the Irish Institute of Gastroenterology and Hepatology (IGGHE).”
She’s going to be able to go back to her normal life, but she’s also going to have to adapt to a new diet.
“The diet is based on a strict gluten-containing diet, which is supplemented with a variety of plant-based and vegan foods.
Dr Kelly said the diet could also be used for people who have been prescribed an anti-inflammatory medication or those with Crohn’s disease.”
It can be used in conjunction with medications like the NSAID drug, and I’m looking forward to seeing if it will work,” she added.
The research, which was supported by the Department of Health, is described as “one of the most exciting breakthroughs in the field of colitis”, and is being led by Dr Kelly.
The team will now start to look at how to modify the diet in future children to make it even more successful.”
We have an opportunity to see if there’s a way to modify this to improve the outcome,” Dr Kelly said.
She said the results of the study are currently being monitored in children who have IBS or Crohn.”
This study is very exciting because it’s a very different type of diet to the normal one,” she explained.”
So it’s the first time that we have really managed to achieve what we were hoping for.
“The research will be published in the British Journal of Nutrition.